Hi everyone
mum here...so sorry its taken a while to get back to all of you, but like you know...there is NEVER a dull moment in the Simpson house!
after we returned on monday from our Dr appt, things were looking ok, although eli was still a bit 'off'...
tuesday morning came and eli woke from his morning sleep with a pretty high temperature (NOOOOO)...so it was off to lakes to see what they thought...they werent mucking around and teed up a trip straight to melbourne...
eli's temp hovered around 38.9 and we figured we should probably call melb.
Anyhoo, the ambo's took us to bairnsdale where we waited to catch an air ambulance to melbourne...after his first needle of anti's his temp came down, but he was still pretty irritable and very tired all the time.
we got to melbourne about 10.30pm that night and finally got to bed around 1.45am after spending a short time in emergency. They whacked a 'bung' in, gave some more antibiotics then we waited until the next day...
the dr's came in and were a bit puzzled about what had gone on. all we knew was that eli wasnt feeling himself and hadnt been for a couple of weeks, but they couldnt see anything wrong and thought it may have been a virus.
We stayed in supportive care (emergency accom situated at the hospital) and had a terrible night with eli...he didnt sleep at all and he was terribly grumpy and gave his lungs a good work out...
we filled him with panadol but it didnt do much good...weird..
anyhoo...eli woke up from his arvo sleep on thursday and screamed non-stop for about 2 hours. Pete took him back to the ward and luckily dr karin came in to see him. She picked up almost immediately that something was going on with his head. She said it was like he was dizzy and she noticed he kept tugging at his ears. Pete said that we had had them checked every time we came up coz we noticed the same thing. We were told they could see nothing and we thought it might have been teeth coming through.
Anyhoo....dr karin arranged the eye people and the ears/nose/throat people to have a squizz. She also added an anitbiotic which seemed to work pretty quickly. It was lucky she was there to see his 'meltdown'...
the eye people were looking for pressure behind his eyes, and the ear/nose/throat people were looking for signs of infection. The Dr saw what looked like a bit of fluid in his right ear and thought it might have been the cause of his grief. She left us, came back, had another look and said that she had booked eli in for his ears to be looked at in theatre and suspected he had an infection...in immuno-suppressed kids, they cant make 'pus' which is obviously something they look for!
so off we went to theatre late last arvo and they confirmed he had lots of fluid behind his drums and put grommets in each ear to help drain...
INSTANT relief for eli and mum and dad! Eli is a very happy, curious, playful and gorgeous little soul again.
Like Dr Karin said, we still have to keep an eye on the 'baby' stuff as well as the leukaemia stuff. When he gets temps, we worry about the 'big stuff'...while we kept saying he was tugging on his ears heaps, we honestly thought it was teeth and that there was something else 'brewing'...
when its all said and done, he has 2 new ears and boy is he happy for it...he is back to being awake and active more through the day and is sleeping like a kitten at night. YAYAYAYAYAYAY....
Eli is still on anti's through an IV (because the took his hickman out last wed - DOH!)...but he will hopefully swap to oral anti's early next week. FIngers crossed we SHOULD be home again early next week if it all turns out ok.
Oh...and funny enough he has started eating heaps again - thank GOODNESS!
best go and start the night stuff and hopefully get him to bed a little earlier than what he has been!
luv to all
the simpsons
xox
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1 comment:
Get better soon little Buddy and try not to give mum and dad too much of a hard time!! Hope to meet you soon face to face.. Keep doin what you are doin, love the updates!! and we'll talk soon. Love the Glazners.
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