Small steps forward

Hi everyone
mum here...
today is sunday and thankfully eli is making tiny steps forward. One of his liver tests has come down heaps (one of the ones that was hugely worrying) however another one that tests the bilyrubin in his liver increased a bit yesterday. But for most of them, they are continuing to track down thank goodness.
He continues to sleep heaps, although probably a bit more alert between sleeps. After seeing him this morning, he is starting to move around the bed a little bit more...an indication that his tummy is probably not so sore from his operations the other day. He has had heaps of fluid on board - so much that the other day his right eye closed up because he was spending most of his time on it. It looked like we had given him a black eye poor little thing. But we noticed that with a few blood products, he was able to get rid of a heap of fluid yesterday, and pete said that he had a huge nappy overnight. all the signs we are looking for.
The other thing that has come out of the blue is that he has a 'cold' antigen on his blood! Not really sure what it means for him, but now when he gets a blood transfusion, they have to heat it up as it goes through his line. It was picked up on july 27 (round the same time as when he got really really sick and we were here for 5 weeks)...but he hasnt needed any bloods since then so it hasnt been found.
we only found out about 9.30pm last nite, so we are keen to ask the dr what is it is all about and whether it has any ongoing impacts on him.
Eli is also pretty dependent on magnesium transfusions, clotting transfusions (platelets/plasma and cryoprecipitate) as well as blood now and also has to be topped up with 30ml of potassium a day. apparently it tastes gross and eli puked it all up last night.
We are happy that he is feeling a little better and not so dependent on codeine which is a relief as we really want to leave his liver alone to help it get better.
anyways...as always we will keep you posted and chat with you soon.
luv to all
the simpsons
xox