Snoozy time!

Hi guys
mum here because eli is having lots and lots of snoozes at the moment.
Eli got another urinary tract infection which they discovered on sunday morning and started treatment for with antibiotics...while that was good, he got a really wicked rash which we were all a bit nervous about because of his past experience with graft vs host disease. Dr Karin (who is not ONLY a transplant guru, but also the rash guru) popped in first thing this morning and said it was probably a rash that has flared up due to one of the antibiotics he was given. It was a bit of a relief really, because by not having it, it will hopefully not make him feel so itchy. Its kind of like a huge dose of the measles but more red...
While we are confident that side of things are under control, we are pretty anxious about his liver function. We have just had the liver dr down to try and work out what is going on.
Basically it has come down to three things...drug interaction, viral infection or graft vs host disease. Very difficult when nothing is growing for them to have a 'light bulb' moment where they go...'thats whats causing it!"
The 'liver' guru of victoria is coming down later this afternoon for a chat and to check eli out. She sounds like she is hugely experienced, kinda like a dr karin of transplant!
We are getting the feeling that eli is becoming sick enough to have more hands on deck to try and work out what is going on. A couple of the function tests sees one completely off the charts, and another continually rising - obviously enough to be of major concern.
We have been told that the liver is a forgiving organ and can take a fair bit and that it will more than likely be a 'time' factor. the only real thing they can do is use 'supportive' medicine to help eli's liver work normally. Dr's have explained that there are things they can do and he is now receiving Vitaman K daily and plasma products to help eli's clotting capacity. There are are things being discussed but i think that will be a little down the track.
we are madly hoping they find a crazy virus (which is sooo weird because we havent been ANYWHERE for him to get crook!) and dearly hoping its not graft vs host disease. Its a really fine line. He has been taken off some of the medicines he was on to see if they are having a negative impact as well.
So here we are, looking forward to having some solid answers soon to help eli get better.
I dont want to sound all sooky la la, but this kid is a bloody inspiration to his dad and i. Life is pretty black and white for him and our job i suppose is just to try and keep him as comfortable as possible - which is pretty hard sometimes. We are constantly amazed at his resilience and huge heart to just keep on fighting. He is having enormous cuddles with us and we barely leave his side.
He is pretty crook at the moment and we hope he gets a break from hospital really soon. Buddah knows he needs it...i think we all do!
anyways...best cut the crap and do something...what we would do for a pretty normal life! mmm...ebay is looking good! Perhaps we can 'sell' ours and start again :-)

love and hugs to all from eli
mum
xox