an update for you

Hi everyone
mum here...we wont beat around the bush, eli has been gravely ill for the past few days. His liver has been failing and has been on 'supportive care' (lots of products like plasma and platelets) to help him.
No one knows what is happening or why. Based on this 'unknown', he has had to have a liver biopsy - and another scar to add to his collection. It was an extremely anxious time as eli's liver was not helping his blood clot - an open cut and a piece out of it we were told was going to be hugely risky. Thankfully he pulled through and he was put back under today to have a 'pic' line put in (a skinny version of his noodles) so the staff can take blood for testing. Poor little bugger was running out of veins very quickly because of all the tests they were doing.
Eli is not out of the woods by any means, but seems to be a bit more spirited today and awake a bit more...because he has been fasted so much for all the tests to be run, he has not really eaten anything for a very long while. I think he will have a naso-gastric tube in to start to get some nutrition back into his little body and hopefully that will help his spirits and give him some energy.
The dr's are very good at not giving away too much info. After speaking with one last night, we were advised that if eli's tests results continued to rise, he would have been put on the liver transplant list. That was obviously extremely full on information for us and probably will be for you too. There is alot for us to consume and we let you know what is happening when we can.
The character of this baby is gobsmacking. At his absolute lowest point, he still had the ability to sit up for 10minutes and eat a biscuit and cheese before sleeping again for a further 6 hours. You could play a drum kit in here at the moment and it wouldnt register with him...
for all the time we have complained he has not slept, for once we just want him to be well enough to give us a hard time and not sleep!
Currently, eli is starting to get a fair bit of fluid on board so they are taking precautions to ensure that fluid stays off his lungs.
This might be a bit full on for you all, but i guess everyone that knows us, knows that we will not hide anything. Thats just the way it is...
We have just had the drs visit who have said that they are no closer to finding out what is happening with eli.
They have confirmed that we are still not out of the woods, but some of eli's liver functions have substantially become better. He still has a very long way to go.
They have just put the naso gastric tube in, and will be starting his feeds soon.
We will do our best to keep you posted...given the current circumstances it may take a while.
We have had the most unbelievable amazing journey and it really can be the most ridiculously frustrating place. We have experienced many highs, but also some major lows. We are not just looking after our own baby, but there are many others 'babies' here going through exactly the same thing.
The time we have spent in here with eli through this round of hospitalisation has highlighted to us there are some truly amazing parents looking after their own children and honestly, i know i have drawn strength from a number of them who have recently been through what we hope to never experience, losing their angels.
Our hearts go out to the mums, dads, brothers, sisters, aunts, uncles, nana's, pas, cousins and friends of our gorgeous mates Chad and beautiful Jasmine who have succumbed to their illnesses this week. We are thinking about all of you every day and we will stay strong to preserve your beautiful spirits which have left such an impression on the way we live our own lives.
Best go, and we will keep you posted.
I will try and encourage eli to write a few words in the next couple of days providing he is feeling ok.
much love
the simpsons
xox