Wednesday, August 13, 2008

Its the 'roids!'

HI guys
mum here...eli has had a good day within himself...pretty happy and got lots of nice smiles.
No real test results have come back as yet...so we are pretty much playing the waiting game. Good thing is that his counts have dropped significantly and are sitting at around 18 for white cells and 14 for neutrophils. His chest xray didnt really show anything, and he is needing a bit of salt to his diet because his kidneys are leaching salt as a result of the medicine he is on for the CMV. He also had a finger prick to test blood sugar levels (bandaid stayed on all of 5 seconds!)...and that was ok-ish. Dr Steve dropped his roids down again today which is highly exciting...but we probably wont see another drop now til early next week.
Unfortunately his pulse remained 'stable' at between 160 and 180, so we are really really hoping that comes back to normal fairly soon. cant be good for him. We are also hoping his graft vs host disease will remain where it is for the time being to give his body a crack at the cmv. The next test for that is tomorrow so we will see how we go. We dont have our hopes up (considering the recent sign of infection)...but we are really hoping for a negative return in the next couple of weeks..we are starting to get a bit of cabin fever!
anyhoo...thats pretty much the news we have...just continue to 'suck it and see'..i cant believe the little fella turns 1 in around 6 weeks time...its bloody amazing..
so pretty much, the common line we are getting to answer our questions is 'its the steriods'...damn things they are...gives us belly aches, high blood pressure, high pulse rate, bad temper, massive diet, and interacts terribly with everything else it comes into contact with! Be glad to see the end of them! (but on the flip side, am completely understanding that it is keeping eli well)...
everything comes with a price!
anyhoo..love to everyone
mum, dad and eli
xox

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