a small update

hi there
mum here
eli has been so-so for the past couple of days. There have been a few really small victories but then there has been some steps back as well.
His liver function test has seen a small rise which is not such a good thing considering it was heading in the right direction. It certainly is not as high as what it has been , but any small increase has put us all on notice again.
Eli's bilirubin has also continued to rise which i think has puzzled lots of us, as it was looking like it should have come down by now. So there are still some concerns from a liver perspective.
The other thing is because something is chewing all his platelets and plasma, he is still needing those things everyday. And because his coagulation is still very poor, we are still seeing some bleeding.
Again, the dr's really dont know what is happening with eli.
On a positive, he is playing for a bit longer and is a little more interested in things. But he is still a very very sick little man. We are keen to speak with dr karin at some stage today to see what her take on it all is. Im not sure we will get the answers we are looking for, but we will have a crack!
anyways...best fly...
lots of hugs and smiles to everyone
the simpsons
mmmmwwwhaaaa from eli
xox