steady as she goes...

hi everyone
mum here, eli is sleeping....sssshhhhhh!!!
the drs finally confirmed on monday afternoon that eli did not have his jmml back, nor was it graft vs host disease...it means that we are stuck with a very cranky virus/infection that no one can pinpoint!
His little tummy is still pretty sore and we are still seeing some intermittent bleeding. We had the gastro team down again yesterday, and they too are at a loss to explain why. Hopefully we can just get a few more 'symptoms' that may pin point what is actually going on.
Within himself, he is going ok. we have seen flashes of the old melon (his knickname)...with him tugging at lines he is not supposed too, and we even got a very small giggle from him yesterday. Music to our ears!
had a very rough night last night, he was very uncomfortable with his bowel and tummy stuff so he didnt get too much sleep. He had 5 spoonfuls of weet bix this morning which is highly exciting for us, although we are hoping it doesnt give him too much grief.
I think they are re-testing for hep a again today so we will see what that says. while graft vs host disease can be really nasty, we probably would have preferred it given you can 'fix it'...this virus thing...no one can fix cause we dont know what it is.
he is still getting heaps of plasma/platelets and blood and still has something on board as his white cell count is between 35 and 45 depending on the day.
The drs have also decreased his steriod a little further so he is almost free of it after 5 months. Its amazing, we celebrated 5 months post transplant yesterday....it has gone so quickly!
anyways...best fly...
hope you are all well and you all backed a winner or two at the cup....
will keep you posted!
lots of love and hugs
the simpsons
xox