our little hero

Hi everyone
eli here...mum FINALLY let me onto the computer to have a quick chat to say goodbye!
We have had a huge week and it all culminated last thursday night when i had a bit of trouble breathing...the dr's reckoned i had pneumonia which was pretty serious...
they also told mum and dad that i had septicemia and a positive urinary tract infection...(as well as the rest of the full on stuff like bad liver, gut, bowel and blood)...
I ended up in ICU on friday morning. They did a great job to help me breath again. This morning i had a few issues with some blood...the dr's called it a hemorrhage and unfortunately it filled up my lungs and i had heaps and heaps of trouble breathing by myself.
I could see my mum and dad the whole time and they never left my side. The doctors in icu were awesome and gave me the best chance they could, but you know what...i was pretty tired from all the stuff that was going on in my body and with my mum and dads blessing, i decided to be with my ninny from sale. I know mum and dad were absolutely heartbroken, and i was very very sad to leave them too, but ninny looked too good and i was a bit tired from being in pain.
So without further ado, i would like to thank every single one of you who have stuck with me this whole time. I know that mum and dad thought about all of you, and like we all kept saying, without you all, i dont think i would have got as far as i did. In keeping to mum's words, 'we gave it a fair dinkum crack'.
I love my mum and dad so much and i am thankful for all they did for me. I am also happy knowing that all of you will help them grieve for me. Mum and dad reckon you are all pretty awesome, and i know that i will leave them in very safe hands.
I will play with jazzy and chad (finally coz i have been in isolation for sooooo long!) and will keep an eye on all of you from heaven.
You have all been very special to my family and have lived an amazing rollercoaster with us...something that has probably been extremely difficult to do at times.
Take comfort in the fact that i am footloose and fancy free and am no longer in any pain. I fought the hardest i could and i know mum and dad are so very very proud of me (i heard them whisper to me)...
there will be no more worries for mum and dad about what my counts are doing, how im feeling or why im not sleeping. I couldnt have asked for a better support crew in them and i just love them heaps. Dad reckons i epitomise the 'anzac' spirit and i reckon i had a fair crack.
So from me to all of you...thank you so much for sharing this journey with me...i will continue to watch all of you shine. Just remember, dont let the little things get you down, live life to its fullest and embrace life for what it is.
All my love and kisses
Eli Charlie Simpson
xoxox


Hi everyone, mum here.
Eli Charlie Simpson was born on 28 September 2007 and passed away on November 16 2008 aged 13 and a half months. Pete and i are absolutely devastated with the loss of our son. He fought an absolute mighty battle with infection after infection and not once did we ever give up hope. We were solely dictated by our son...if he was breathing, then there was life and we held onto that for a long time.
We were both present when eli passed away, and it is an experience we will never forget.
Our son was the bravest little battler and never ever ceased to amaze us. There were a couple of times where we thought he would succumb, only to wake up the following morning playing with his tubes and wires.
We are heartbroken and have lost the love of our lives.
We dont want pity or sorrow, eli would not have wanted that. We would like to celebrate his life and keep his legacy alive. He will never leave our hearts.
We take so much comfort in the fact that he is with our nan from sale, and couldnt be in a better place. She will give him the love that we can no longer provide for him.
In the words of eli, we would dearly like to thank everyone who has sent messages of positive thoughts. There was not a day that went by without receiving a text or email from one of you wishing us all the best...it honestly kept us all going and until today, we never gave up hope that eli was going to make it.
The battle he fought was just too big for his tiny body and we are just so proud to have had him in our lives. this kid was simply amazing and for all that met him, there was always a sense of being in the presence of someone special.
our heartfelt thanks goes out to all the nursing staff on the 6th floor, especially rae-lee and carol who were there for us when we needed it the most. we are also thankful to the team in icu for never giving up and trying everything they could to help our son.
we are exhausted and have fought a battle that has gone on nearly 10 months. Thank you all for sharing our highs and lows, it something we find very humbling and we will never forget it.
we are still in melbourne and are refusing to travel home until eli is on his way too. It is going to be a huge adjustment for us but take comfort in the fact that there will be an extra star in the sky and an angel looking out for you....we do!
With love to all of you
"The Simpsons"
xox

we would love for you to help us celebrate eli's life. We are unsure of details at this stage, but will try and keep you posted. For those who live locally, keep an eye out in the paper, or the herald sun for celebration details.

we request no flowers, but in turn support some charities that are dear to our hearts - the leukaemia foundation, Challenge for kids with cancer and Angel Flight.
we hope to see you soon.
xox