its so nice to be out!

hi guys
everything is good here in the simpson household...we have enjoyed our freedom so much...ive been on HEAPS of walks since i got out...dad has been grouse and i reckon i should start a frequent walker program! i just love being out thats for sure...
we still have to go to the hospital 3 days a week for the drug 'ganciclovir' to help me get over the cmv bug i got. That runs over around 3 hours, still, its way better to be out than in thats for sure...
So where we can, we wrap up the dr's appointment and the medicine all at the same time.
Im feeling pretty good. My platelets are holding at around 20. While still really low, its good because im not needing any infusions. i think my blood is pretty normal which is also pretty good, cause as i have mentioned, the medicine im on can knock around my marrow, so i guess we are not expecting huge things with numbers at the moment.
I cant believe im nearly day 100! i think that clicks up around mid september. I will have to have a bone marrow aspiration again so they can do some tests to make sure everything is where its supposed to be. The Dr's said that while its good to get an idea, we cant get too hung up on it cause they said that most tests come back a fair bit sqew-if initially, its more the 6 month and 9 month aspirations to get a bit more excited about...
ive been a tiny bit unsettled over night...mum thinks its either a bit of a belly ache or a possibly another tooth (im giving mum a few love bites!)
so we are still very unsure as to when we can head home again...but we are definitely banking on AFTER 100 days for us...
while i would really love to be home for my first birthday, we are pretty sure that may not be the case as well...
we would like to say a huge happy fathers day for all the brilliant dads and grandpas and hope you have a wonderful day. mum and me are pretty keen to take my dad for a little bushwalk somewhere...that would be awesome, but we will have to wait and see.
anyhoo...best fly...we are heading out for a walk...they are building some units next door and boy are they loud!
love and hugs
eli
xox