Update for Eli

Hi there
mum here...bubs is still in hospital soaking up all the attention from the nurses...cheeky bugger.
He is very much back to himself, although one of the issues we do have is the amount of steriods he is on...they are contributing to a baby that is extremly temperamental and hungry ALL the time...i think he chewed through almost 900grams of food today. Absolutely amazing and we are finding it difficult to keep up...he is weighing in at around 10.5kg which is very good, considering he went up to 11.2kg at the height of his illness...he was sooo puffy poor bugger.
So yeah...when he laughs, he lights up our world...but when he cracks it, boy, we all run for cover!!!
Im going to instigate some physio for him to try and keep him moving and a play therapist to help me keep a hospital room exciting...
eli's first test for CMV came back positive which is a bummer and means that we will be in hospital for another 2 weeks at least...the tests are done every monday and thursday and we need at least 2 negative tests. The offside of the new medicine he is getting is that it can have an impact on his new marrow. We have been told to expect his counts to drop. To combat the counts decreasing, it looks like he may need to have the needle in his leg again to spur the new counts on. We are not too sure, but i guess that it really is up to eli! We were also told that cmv can hang around for MONTHS - YIKES...so we need all fingers and toes crossed to get rid of it...bloody thing it is...he is showing no ill effects from it at all which is good.
Other good news is that eli is only a couple of days of finishing off his round of antibiotics. It feels like it has gone forever..but will mean that 1 infusion every 6 hours and 1 every 24 hours will go...in a nutshell, not so many alarms going off!
Wamma has been absolutely fantastic and has started sharing the night shift with pete, so everyone is getting plenty of rest...the third person is a huge help and wamma has slotted into our families weird ways of living (including the wonderful hospital environment) really really well. Its a real credit to her, and has given us more time to rest...
anyhoo...thats about it from the simpsons...hope you guys are all well and keep the messages coming...
love to all
mum, dad and eli
xox