HI everyone
Eli here...thought i would touch base just to let you know the latest goss...i have just had my naso-gastric tube out and BOY does it feel great! Mum and dad reckon i look weird, kinda like having a moustache shaved off!
Im still not sleeping great at all...Dr Karin came in to today and said that i was doing all the right things. I have started taking most of my medicine by my mouth (which is why i can take out the tube)...and im still eating really really well.
Mum and dad look very tired, as im probably on averaging 8-10 hours of very broken sleep a day...its hard cause i cant tell them whats wrong, but im sure they will work it out soon. I havent put together more than 2 hours sleep straight day or night for the past 6 nights, so we are all feeling very tired. Little steps forward!
My neutrophills are doing a great job and im at 430...only 70 to go and i will hit the awesome 500 mark which means 3 straight days of those and i will be able to venture into the bat cave...yahoo!
we have been locked up now for 29 days...amazing...i think mum was a bit over it yesterday, but she is feeling a little better and was back to her chirpy self!
tyfgbuinuybt jhg c - i was helping mum type!!
anyways, its nearly feeding time at the zoo, so i will catch you all later...we will try and get some piccies up soon!
love to all
eli
xox
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eli in overalls
About Me
- Eli Charlie Simpson (28/9/07 - 16/11/08)
- I was diagnosed with JMML - a rare form of leukaemia when i was 15 weeks of age. I passed away on 16 November 2008 when i was 13 and a half months of age. This is my mum and dad's story...
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eli in overalls
2 comments:
Hi Eli, Jodie and Peter, glad to hear that all is going well and that youll hopefully be entering bat cave soon. We check out the blogs regularly to see how things are going and its great to hear things are going well. Take care, were all thinking of yous.
Love Tara, Colin, Shivanah and Lachlan xxxx
Hi Eli, Jodie and Peter, glad to read that all is going well. We read regularly and its good to know that things are looking up for you all. Take care and look forward to reading more of how things are going.
Love Tara, Colin, Shivanah and Lachlan xxxx
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